Introduction

Hi, Thanks for viewing my blog. It lets me have a rant and I may even help someone along the way. Got the idea to do a blog following using an Arthritis Forum for the first time at www.arthritiscare.org.uk

I suffer from Psoriatic Arthritis which is very demanding in all aspects of my life and this is my story on how I deal with it on a day to day basis.

I have been spending lots of time recently researching arthritis and pregnancy, there isnt loads of information out there and the most helpful thing i have found to date is forums and hearing other peoples story. This just confirms to me why I am 'blogging', if someone like me wants to know they are not on their own.

Friday, 27 July 2012

13 Weeks and Flaring

Wednesday will mark a year from coming off all my drugs and I have coped really well, suffering only one flare about 4 weeks after coming off the drugs, that was until....
.... this week; 13 weeks pregnant and flaring. I have to say its hit me hard and quite unexpected. I had been coping so well and thought that I would sail through the rest of my pregnancy with no flares. Unfortunately the sudden change in weather brought with it my flare. With only paracetamol to help with the pain its been a very uncomfortable week. I haven't really moved from bed apart from the continuing trips to the toilet (pregnancy effect), and they take me a while to get up and moving.

I noticed I was not quite right on Monday; our first wedding anniversary, when a few of my joints started niggling me. When I went to work Friday I had horrendous pain in my lower back with discomfort at other joints; the pain was so full on that I was overly hot and felt sick. Pain has a habit of doing this to me. Instead of powering through the whole day; which I probably would have done when I only had me to think about I went home to put my feet up and get some rest, hoping I would be fine the next day. Unfortunately not, I woke up Wednesday and my arthritis is in full swing; effecting all my joints with not only incruciating pain but swelling too. My little one has kept me going, I'm fed up of staring at the same 4 walls but I have to think about him/her.

Resting the rest of this week and over the weekend I am hoping will be enough. I want to be able to enjoy the rest of my pregnancy, not be in all this pain.

I'm off now for my next dose of paracetamol, fingers crossed this flare will go away as quick as it came on.

Thursday, 19 July 2012

12 and a half weeks down, 27 and a half weeks to go!!!

Its been a long time, but not blogging is the only way I have been able to keep my mouth shut.
We are pregnant! cannot start to describe how excited we are. I found out on 22nd may, I couldn't believe my eyes when the little line appeared. 3 tests later I was convinced and could not stop smiling.

I got an appointment with the Dr the following day who estimated due date based on my last period as boxing day, this caught me a little of guard as from the clear blue test I was expecting an additional 4 weeks, a January baby not a Christmas baby. As expected due to my medical he said he needed to refer me to an obstetrician for a consultant led pregnancy and that I must book a midwife appointment ASAP.
Midwife appointment was a week later, had to let my manager know as I was feeling rough and had done for a few weeks.

The midwife appointment came and I was quite disappointed as I thought we would get to hear baby's heartbeat. Instead it was paperwork, peeing in a bottle and the midwife trying to get blood. I was glad I have some knowledge of what to expect etc, as considering its our first baby the midwife told us very little.

As soon as I got my scan appointment through I was on a countdown especially as, if the Dr is correct I would be 12 weeks and 2 days.

The scan approached quickly even with my painful growing boobs, the vomiting, the constant weeing, the poor night sleeps and worst of all the dizziness (to the point if feeling drunk where the room is spinning). In between which I was going on and off food.

By the week of the scan, comfortable in maternity day and sleep bra's and with the other symptoms subsiding I got even more excited, and it became even mote difficult to keep the secret. I'm glad we chose to share the news with close family and friends otherwise I might actually have gone insane. And I was really elated by how excited my parents and brothers were as well as the in-laws!

2 night's before the scan I couldn't sleep, I suddenly got nervous about the scan, worrying they wouldn't find a heartbeat, but I kept trying to counter that with the comments I'd had when suffering sickness etc.. saying it indicates a healthy pregnancy. Such mixed feelings!

As predicted the scan was very nerve racking. I sat in the tiny waiting room with hubby desperate for a wee and all of a sudden started crying; I was scared. This was not helped when i got seen and laid on the bed and couldn't see anything on the screen. Oh my god, nothings there, there isn't a baby!!!! But she reassured me when I questioned this saying I just wasn't as far along as the doctor had thought. She estimated I was 7 weeks 3 days - a due date of 28th January 2013. So much better for my baby not to have a birthday right on top of Christmas. I saw a smudge and a little movement, it was the heartbeat, just this little pulsing. I was overwhelmed!!! I'm gonna be a mummy!!!
Booked another scan in for 19th July when I will be 12+3, eek! We should see a proper baby then, hopefully I should feel much more at ease then too.

Between the two scans i continued to be absolutely exhausted and bursting to shout out my news to the world. Hormone changes have given me a bit of a reminder as to what it was like being a teenager, however this is worse. I have constantly been bursting into tears for no reason at all, one minute I can be laughing and the next crying like a baby.

I had my first antenatal appointment with the obstetric consultant as I have got to have a consultant led pregnancy. She went over what to expect from my conditions during the pregnancy and after; and that was about it.

Before I knew it I was 12 weeks and a few days away from the scan, cannot describe how excited I was, with just a hint of nervousness. At last the sick feeling is subsiding and generally feeling better, unfortunately due to the bad weather my arthritis isn't as good as it could be. At about 11 1/2 weeks  I started to show and my clothes became more and more snug, I only needed another week for it not to notice so nobody guessed - with any luck they may just think I'd put on a few pounds.

Scan day today...Eeeek!!!! Oh wow, how much baby has grown since the scan 5 weeks ago. This is what i was expecting to see back then! It was such an amazing experience seeing our little baby, and shocking at just how much it was moving. I really am going to be a mummy!!!! I cannot even start to explain how emotional this is! 12 weeks + 3 down, 27 weeks +4 to go until baby will be in our arms.

Wednesday, 9 May 2012

A really hard week!

I don't know why but its a really hard week!

I feel exhausted both physically and mentally. The bank holiday weekend was quite busy so done little to recuperate. Celebrated my birthday with lovely friends which was nice.

Got my MRI Friday and maybe a little nervous about that.

Hubby and I are both trying to eat healthier, fell down today, so hungry so guessing my monthly (or not so monthly, currently) visitor is on its way. I hadn't been thinking about conceiving this month and just in the mind set that it will happen when it happens but the thought of my period coming has made me a little down.

Fingers crossed next month will be the month.

Friday, 27 April 2012

'Alright my Luvverrrrrr!'

So we got away, and only a few hours after the time we had planned. I was packed, or should I say over packed to ensure hubby had enough clothes. Picked him up from hospital and after a quick freshen up we left.

What a wonderful way to introduce myself back in to driving - motorways in torrential rain I could barely see in front of my face - nice!! But I managed it, and surprisingly it's easier than getting back on a bicycle after not riding it for a while. A bit concerned however at the progression of my arthritis since last driving in November - I never noticed the pain in just holding the steering wheel before! For the rest of the week and as hubby got better we shared the driving and by our return home he drove the whole way, so I got a nice kip.

We had a busy week whilst away and made sure to make the most of it, even though the weather wasn't as good as it could have been. A bit of a contrast to our trip to Egypt last year.

We visited Cheddar gorge on our first day trip - it was quite novel as the dog was not only allowed in the caves with us but also shops and restaurants. Theo loved it, I don't think he quite knew what to do with himself. I was proud of my achievement too as we climbed Jacobs Ladder (274 steps), it was hard and every step painful but I was determined not to let my arthritis stop me. I did however make the most of the rest stops on the way up.

Another visit was to Longleat, whilst the safari was in the car, there was much more to see which also involved lots more walking. Very tiring but I kept pushing through, I am determined this disease will not get the better of me! It was hubbys first experience of a safari park but even I was amazed at how close lots of the animals were. We had a monkey drinking the water off the car and then a naughty monkey trying to bite the nozzle for the windscreen water spray off. A rhino nearly walked into the car and even a tiger was within touching distance of the car. I wonder how these animals would have reacted had we been allowed to have Theo in the car, or even how Theo would have been had we taken him. Maybe we won't try that!

On the nicest day we had (weather wise) we made the most of it and went to Weston Super Mare, Theo and hubby ran around the beach like loons, whilst I would have pretended not to know either of them, I really wish I was able to run about like that without causing myself pain. We had fun though and spent a long time walking, then the weather turned. What's all this about a hosepipe ban???? Had a bit of a drive then got back to the caravan, later in the day as the weather had picked up again we strolled the 1/2 mile to Berrow beach which Theo loved again. He then spent the rest of the evening sleeping and didn't even mind us leaving him to go out for dinner.

Wednesday took us to Bristol and the Clifton Suspension Bridge. The heavens opened when we walked across the bridge - but it was well worth it as it was quite spectacular! We then drove into Bristol after I had a slight problem navigating as I was looking at the map wrong. I did wonder why the road names weren't matching up to the road names on the map. I'm sure driving somewhere unfamiliar could cause the calmest people to have arguments - hubby got a little stressed finding parking. I was helpful saying things such as 'Follow the signs' or 'I can't see, I haven't got my glasses on'. We eventually got parked and done yet more walking. After visiting the Christmas steps and the fish n chip shop we went back to the caravan. I was in need of a rest which turned into a nap, a 3 hour nap. I had to give in at this point. Luckily we had nothing planned for the next day and just relaxed, taking only a leisurely walk along Berrow beach.

It was a lovely week, and now got a busy weekend to look forward to. Its my twin nephews 3rd birthdays today; they are very excited to the point that they sang happy birthday to US when we rang to wish THEM happy birthday. I also have the pleasure of a birthday Sunday, slightly older than 3 though but will be sharing their birthday party tomorrow morning and then in the evening having celebrations with my family.

Sunday I am expecting to be spoilt rotten by hubby, I think I deserve it - after all in the last year I did give him the pleasure of making me his wife.

Monday is going to be spent catching up with friends and catching up on washing and housework whilst hubby returns to work. But back to reality for me on Tuesday too, only a 4 day week though and then more birthday celebrations with friends.

Now I'm just hoping hubby can stop with the accent he has picked up and the continuous 'Alright my Luvverrrrrr!'

Friday, 20 April 2012

If its not one thing its another

So I'm sitting here, the car is all packed for holiday, but the question is will hubby be discharged and will he be well enough to go away?

These things always have immaculate timing. Last Thursday hubby woke up in agony with pain in his knee, obviously I thought he was exaggerating, but by hat evening it did look quite sore. As I cant drive his dad took him to out of hours, where he was diagnosed with Bursitis (AKA Housemaids Knee -which i found highly amusing) he was prescribed antibiotics.

However Wednesday evening he was still no better, in fact it was getting worse. Again the caring and patient wife I am thought he was making a mountain out of a mole hill. So he drove to A&E, and surprisingly seen quite quickly. An Xray and lots of bloods later they decided to keep him in. 'Sorry, what?'

Yes it caught me a little off guard it was the last thing I was expecting and so much went through my head but I tried my best to stay brave about it in front of him as I could tell he was upset. Then PANIC! How am i going to get the car home? Even though i knew i am probably well enough to drive now i haven't driven in 4 1/2 months - its dark, and I haven't got my glasses. Thank god for my parents, they came and sorted that out for me. His parents came too and we waited with him until he was put on a ward, at which point they took me back to get him some things. Eventually after dropping these off, and a bit of a break down when leaving the hospital I got home at 12.40. I sobbed, and my little Theo (the dog) done a very good job at looking after me but didn't stop looking for his daddy. I was not only worried about hubby but as I rely on him so much at the moment I was worried how i would cope at home without him.

I have done well though and hopefully he will be discharged at 12 and on our way.

Oh yeah I forgot, i thought I'd chase the EEG results to see if I can drive now - after all it was ONLY 8 weeks ago I had the EEG, and I NEED to drive. Eventually after finding out they hadn't even done the results yet, the secretary got the DR to look at them and called be back to say 'I'm fine to drive'.

Yes so happy however still a little nervous.
Life seems such a whirlwind at the moment, if its not one thing its another - wheres the light at the end of this tunnel?

Wednesday, 11 April 2012

what a lovely side effect

Its been a while I know, I don't really know where the time has gone. Sometimes things just seem to take over.

Following my rheumy visit and bloods, I awaited my unknown appointment with Gastrology, having no idea what so ever this was for. I turned up with mum by side; dedicated chauffeur for the day - still being unable to drive. In the appointment it was discovered the GP had referred me at the end of 2011 as my ALP levels on my bloods had gone above 400 when they should be a maximum of 200; suspected liver damage. Oh Joy! What a lovely side effect of my medications, so more blood tests, to the point my veins collapsed.

I went away from the hospital wondering what else can possibly be wrong and had 2 bruised arms!

I am quite used to hospitals and being poorly now, so when mum was taken into hospital I was quite shocked at how I just broke down with panic. I held it together fine when I was at the hospital with her, but as usual the hospital lived up to its general standard. Its strange I've never known my mum to be poorly, she never makes a fuss! I wish she would just look after herself - she was laying in a hospital bed STILL worrying about everyone else. Nearly 2 weeks on she is on the mend thankfully, but not sure she'd let on if she was still in discomfort.

Hubby is settled in his new job now which is fab and a relief knowing we will have money again.

I have an ultrasound Friday - don't get too excited not been successful in conceiving yet; its to check my liver following my gastrology appointment. Conception has to be put on hold now too, got to have an MRI scan in regards to seizures which is in May; but then it will be all go again.

The 4 day Easter weekend was much needed as I had got to  point of exhaustion. Back to work I went Tuesday and whilst it was a struggle I have in my mind that I go on holiday with hubby and the dog in a little over a week. Really looking forward to getting away from everything that's been going on lately.

Monday, 19 March 2012

Resulting in...

What a day! After another awful night sleep, of fits and pain resulting in a dopey morning; resulting in injury, resulting in more pain, resulting in a two hour visit to A&E!

I bashed my elbow on our door on the way out to work, not overly aware of what I had done and hubby making me aware of the 'crack' he heard. Oh and then the pain! But soldiering on as I do. Hi! Ho! Off to work I go! Didn't have much of a productive morning and after much nagging from my colleagues to go and get my arm checked; hubby took me to A&E. By this time from keeping my arm still I had gone stiff too! I also had a rheumataology appointment at 4.15 so when I still hadn't been seen at 3.45 I went to the desk which pushed them along. The Dr said it was broken as I could move it (so could my nephew but his was broken) and he wouldn't xray due to us trying to conceive.

So I was in time for my appointment not that it mattered as I wasn't see until 5pm. The result came back wasn't exactly Lupus, it was something which was indicated in the Lupus tests. APS - antiphospholipid syndrome easy to understand as sticky blood. Dr C my normal consultant was in agreement that this wasn't something which could have been left until my appointment in June and needed re-testing straight away to check it wasn't a false positive; it could also explain the fits. Dr C thinks it is important to get this checked and if necessary diagnosed and treated ASAP as it can cause miscarriages. It was as much as I could do not to burst into tears when he started to say this; as if this isn't challenging enough already. So leaflet in hand and blood forms I went to yet another waiting room to get my bloods taken. Began to read and promptly stopped reading the leaflet. I think I will just wait for the results. Dr C thinks an MRI should be done in regards to this and the fits too!

I came home and got ready to update you guys and came across some sad news my friend who is also trying to conceive has miscarried, my heart goes out to her and her husband; I just hope this doesn't make them give up.