A well overdue instalment to my blog. Who knew how busy a
baby keeps you?
Well I am enjoying every second of being a mummy, and my
little boy is going to be 6 months next week. The time really does fly. He is
rolling over, sitting up and not far away from crawling or cutting his first
tooth.
So, the flare settled down, and whilst I was no means pain
free I was able to push myself through every day. I want so much to be able to
avoid the drugs after the damage they done to my body. I met with the physiotherapist
as this is one of the things I have requested to try; the medication really is
a last resort! When I met with her I had started flaring again, and
hydrotherapy was also suggested. To date I have had 2 hydro sessions, the flare
started to settle but BOOM!!! I am officially in agony again. My little boy
really is ‘the BEST medicine’, I can’t just give up, and he gives me a reason
to get out of bed every morning.
Last night was the first time that the pain has really got
to me in a long time. My joints felt like they were on fire and as though
someone had taken a sledgehammer to them. Pain is so hard to describe. I laid
in bed on my memory foam mattress and it felt as though I was lying on a bed of
stones. The pain had me sobbing, this does not happen very often and I feel
somewhat disappointed that I have let it get to me. But the sobbing was a
combination from the excruciating pain and the frustration of this horrible
disease. It has been suggested by my rheumatologist that as well as the
arthritis I am likely to have fibromyalgia, I’m currently waiting a referral to
pain management.
I have however, throughout my sleepless night made the
decision to call rheumatology and request some help, probably a steroid
injection. I reacted badly to this before, by going numb all over but it did
take some of the pain away. I have to think about my little man now too and I
NEED to be able to look after him. I would prefer this to be as comfortable as
possible. So I have an appointment at 11am on Friday. I still want to avoid
continuous medication but I am at the point where I need some relief.
Hopefully, with this, physio, hydro and pain management I will be able to find
new ways to deal with it.
As from day one, I hope this blog helps people to understand
the condition. I wish people would be less ignorant, whilst I have learnt to
ignore the looks and comments when I park in a disabled space, my husband finds
this really frustrating, I tell him it is just ignorance. On the outside, I’m
young and healthy looking, but you should never judge a book by its cover.
Believe me; if they want to park in the disabled bays I would be more than
willing to give them this, the catch, they would need to take this horrible
disease too. I don’t think I’d have any takers somehow! These little things
just make day to day things people take for granted just that little bit easier
for me.
Now my little boy is in a better routine hopefully I will be
able to update you all more frequently, thanks for reading!
No comments:
Post a Comment