Hi, Thanks for viewing my blog. It lets me have a rant and I may even help someone along the way. Got the idea to do a blog following using an Arthritis Forum for the first time at

I suffer from Psoriatic Arthritis which is very demanding in all aspects of my life and this is my story on how I deal with it on a day to day basis.

I have been spending lots of time recently researching arthritis and pregnancy, there isnt loads of information out there and the most helpful thing i have found to date is forums and hearing other peoples story. This just confirms to me why I am 'blogging', if someone like me wants to know they are not on their own.

Monday, 27 February 2012

GRRRRRR!!!!! Organisation people

Yay! 2 minutes past 8 and I manage to get through to the Dr's and get an appointment for after work today. Could not have been more different to Fridays experience. Excellent, I was looking forward to being able to discuss this result and what it actually meant.

No such luck; arriving at the Dr's at 5.20 for my 5.30 appointment only to be seen at 5.50 and then get told that they were results I need to discuss with my rheumatologist. The Dr could not comment as he was not a specialist - so why do I receive a phone call last Thursday saying the Dr needs to see me to discuss these results. GRRRRRR!!!!! Organisation people, a wasted journey, wasted time and wasted fuel which I just cannot afford at the moment.

So deep breaths and counting to 10 as chances are it wasn't necessarily that Dr's fault. Still agitated by this I arrive home after being out since just gone 8am this morning to find a demand of payment for my ground rent. I have until this year paid twice a year by cheque but changed to monthly standing order from the start of this year as I know we may potentially move this year so it will save complication. I have to date had 2 months payments taken out with another which will come out of my account tomorrow. I called in January when I received my first notice of payment and trusted it had been sorted out. Obviously not, GRRRRRR!!!!! Organisation people.

So more stress but now with my little rant on here and my strongly worded letter of complaint to the company which will go in the post first thing I am starting to chill out. Where is the chocolate when you need it.

Maybe its just because I'm tired, my fits were bad in the night - they woke me up and scared me to the point I dared to wake hubby up. Yes I'm tired but is organisation that much to ask? Do I not deal with enough already?

Hubby has started a blog now to - check it out if you like, it may show you the other side to some of my stories!

And once again thanks for continuing to read about my little life! x

Sunday, 26 February 2012

'The Surgery Is Now Closed'

What a week! I did my first week where I worked some full days; it was a struggle and I was absolutely shattered by the time I got home, but nonetheless I got through it. I also had an 'Access to work' meeting to see what adjustments can be made to help me get more comfortable at work. I've had an assessment a few years back, so didn't know if they would be able to suggest anything new which might help but they did. I need a new chair, one which actually provides support to my neck and with arms which aren't likely to fall off I touch them; but as well as that they have also suggested some voice activated software to decrease the amount of typing I have to do; due to the increasing pain and swelling I get in my hands and fingers. This is all very exciting; anything to help me get through my shift is a godsend - and I never have any problems talking!

Thursday evening 17:22, already a bit anxious about my EEG I was having the following morning, the phone rings. It is the Dr surgery informing me one of the tests for Lupus has came back positive and needs to be repeated in 3 months; but the Dr has asked to see me. Even though its only 38 minutes away from closing they refuse to book me an appointment for the following day as its 'ring on the day' appointments only. Friday morning, before 8am get in the car to be driven to the hospital for my EEG; as soon as it turns 8am (Dr's opening time) I call the Dr's for the voice mail to inform me 'The Surgery Is Now Closed'. I then try again to receive an engaged tone for 15 minutes, then manage to get through to wait in a queue for a further 10 minutes. Lets bear in mind at this point I am in the waiting room at the hospital, waiting for my 8.30am appointment for an EEG. Once I eventually get through there are no appointments left and the soonest they can book me in to see the Dr is a whole week away. So they tell me something on Thursday which I have got to wait and worry about for over a week before I can discuss it with my Dr. Grrrr! Not only this but it means more time off work. I already had Friday off.

It really is quite frustrating, not really sure how I feel about getting that result either. Whilst it might explain a lot of things; it makes me wonder what will come in the future. I don't want to think about it too much before I see the Dr as I don't really know what any of this means.

My EEG went well, the lady doing it was the same lady that carried the test out on me 11 years ago. So after lots of drawing on my head, gluing things on, hubby having a giggle and lots of flashing lights causing me discomfort; the test concluded and I have a potential wait of up to a month for any results.

Monday, 20 February 2012

Getting Back to Normal

Firstly let me apologise for neglecting my blog for the last 2 weeks. I have been putting all my efforts into getting back to normal, starting back at work and trying to do a bit at home too; whilst dealing with the arthritis being up and down and not knowing what I will wake up feeling like; as well as navigating the snow to get to work. I am glad that it eventually disappeared.

So 3rd week back at work and been easing into it but worked a full day today; I love being back but I'm not going to lie - its hard! Its exhausting!

It was hubby's birthday Saturday and at 00:02 (yes 2 minutes into his birthday) he had a bit of a mid-life breakdown, I was only teasing - come on he's only 27. I'm 26 this year but what does age matter, I'm like a 80 year old most the time. Not this weekend though, I pulled myself through so that he could have a normal birthday and let my hair down with a couple of drinks, which turned into a couple too many. But it was awesome to actually feel like 26 for once and be a little reckless, definitely what I needed after getting a negative pregnancy test that morning. It was an awesome night and apart from the increased aches and pains, I felt fine Sunday morning. This was definitely a good thing as we were having a family party, 14 of us, 7 of which kids and I had to sort all the food. It was a lovely day, probably a bit noisy if you are suffering with a hangover but you will have to ask hubby that.

So I am gradually getting back into a routine and feeling good for it. I have my EEG this Friday and its still early days on the baby front, so got plenty of time to wait for it to happen.

Monday, 6 February 2012

The Waiting Game

In life you seem have to wait for everything. As a child it was always the long wait for birthdays and Christmas; the things which are easier to wait for as you get older.

I was expecting a huge wait for my EEG appointment following seeing the Neurologist; shockingly it is the 24th February - only 25 days after my appointment. I've had one before so nothing to worry about and at least then they will be able to corroborate that there is a brain in there....somewhere!

Using the ovulation kit this month to check; firstly if I am ovulating and secondly when in my cycle it is happening. All the peeing on sticks waiting for what you want to see so that you know you have a chance to get pregnant; and then the day you get the smiley face to confirm ovulation really does make the wait worthwhile. Yes I have definitely ovulated this month so now another waiting game to see if it has been a successful month; fingers crossed! and toes and everything else!

A big step today was going back to work, I only worked 4 hours to ease me back into it. Minus the annoyance of problems logging on to my systems after having access revoked I rather enjoyed it. I was most anxious about walking in the snow. I struggle walking at the best of times, but me and snow/ice do not mix well - its not happy with just seeing the souls of my feet; it needs to see my bum and/or y face too! All in all a good day - exhausted now and painful back but a restful afternoon and early night in readiness for day 2.